For care givers often the quandary is ‘How much of myself do I give?’ As loved ones get less capable and more dependent physically and emotionally, the burden of looking after an older person can get more and more wearisome even for the most committed caregiver.
Let’s take the example of Anoma, a mother of two with an aging father in her care. After the loss of her mother, her father seemed to withdraw from the world. He stopped meeting up with friends and, as his faculties deteriorated he lost interest in most activities. In a bid to force her father out of his shell, Anoma began to include him in as many of her social engagements as possible and took over many of his responsibilities. What she found was that soon her father began to depend entirely on her and her family for most of his physical, social and emotional needs. Moreover, her father became less forgiving when the support was not available. If she was ill or busy with her kids, he would get snappy and irritable. Anoma found herself torn between despair, love, guilt and anger.
Anoma’s dilemma has been echoed on several caregiver posts and blogs and the consensus is that setting boundaries early on makes the relationship between the caregiver and the elder healthier and stronger. Saying ‘no’ is not easy and can break one’s heart, but setting certain rules and gently, though firmly ensuring that those rules are not broken gives caregivers the time and space they need to look after their own needs. This will help bolster the resources and energy caregivers need to provide better long term care.
However, where does one start if the caregiver is already in a relationship where the elder in their care is used to having them on call at all times. It starts first with carefully thinking out the boundaries that would work for both parties. The next step would be for the caregiver to have a conversation with their elderly loved one about where they stand while clearly conveying the new boundaries that they feel would work. What would help is, keeping the explanation simple and clear so that it doesn’t become a protracted negotiation. The caregiver needs to make it clear that while they may be less involved on certain instances, viable alternatives have been thought out such that the person being cared for is always looked after. The alternatives could even be encouraging the elder person to be more independent. Finally, the caregiver must clearly communicate that their loved one is not being abandoned. On the contrary this change will help create a stronger, and more enjoyable and pleasant relationship between the caregiver and the elderly.
Conveying the new rules is the easier part, implementing the same may prove to be a bigger challenge. There could be a constant pull at the heartstrings and play on your guilt, but the caregiver has to be consistent. Every concession that is made will make the elder in their care take the new rules less seriously. Caregivers need to show their elders that while their concern and love has not reduced, the rules will not be bent. Eventually things will start getting easier. Caregivers can improve the moments spent with their loved one with more conversations, sharing of interests, and trips down memory lane. Eventually as the new rules come to be accepted, caregivers will discover a new found pleasure in their relationships with their elders.